CFPG Adult Cystic Fibrosis Center

CFPG ADULT CF PROGRAM

Welcome to The Adult Cystic Fibrosis Program at Central Florida Pulmonary Group. Our program provides comprehensive care for adults (ages 18 and older) with cystic fibrosis. Our Adult Cystic Fibrosis Clinic has been accredited by the Cystic Fibrosis Foundation since 1999 and is committed to providing you with excellent care, following the current Cystic Fibrosis Foundation’s treatment guidelines.
As our patients with CF grow older, they are being faced with challenges that require expertise from internal medicine trained pulmonologists and specialized healthcare providers. Our focus is to provide the highest quality health care while preserving lung function and quality of life.

HEALTHCARE TEAM

The Adult CF Program provides personalized care and support to our patients and families through a multi-disciplinary team approach. Our program brings together specialists from many areas of medicine to address the unique needs of our adult patients. Our entire staff has extensive experience working with adults with CF. The adult team includes:

Pulmonologists and Co CF Medical Directors

o Dr. Daniel T. Layish
o Dr. Francisco Calimano

Clinical Director of Research & CF

o Kathleen Summo, RN, MSN

CF Coordinator

o Desiree Serr
cfsupport@cfpulmonary.com
407-841-100 ext. 158

Social Worker

o Heather Fogle, MSW

Respiratory Therapist

o Mohammad Ahmadzai
o Lela Fairow
o Marlyn Kristoff
o Cheryl Montanez
o Vatsana Xayachack

Nutritionist

o Candace Chemtob, RD

Medical Assistants

o Jackie Duran
o JoAnn Stephens

CF Registry Assistant

o Deborah Terilli-Hill

Research Coordinator

o Billy Fortson
o Bert Kesser, RT

Chaplain

o Brad Kurlinski

Our multi-disciplinary team meets bi-monthly to discuss patients to share their assessments and concerns with one another.Any questions please call the Adult CF Coordinator at (407)841-1100 x 158

OUR SERVICES

The Adult Program provides comprehensive care, including:
Diagnostic testing such as:
o DEXA scanning
o CT scanning
o Chest x-rays
o throat cultures
o sputum cultures
Pulmonary Function Testing to see how well your lungs are working
Close monitoring of nutritional status
Emotional support and social work services
Patient education regarding such things as nutrition, avoiding infections, and caring for yourself at home
Training in airway clearance techniques
Access to patient support groups, assistance programs, waiver programs and CF community organizations
Adult transition management

YOUR APPOINTMENT

Your appointment will be held during our CF clinic. On that day you will meet the RN CF Coordinator, CF Registered Dietician, CF Social Worker, Respiratory Therapist, Medical Assistants and your physician.
Your RN will talk to you about your treatments and fully review your medications to determine the availability of patient assistance and support programs for you. Your Respiratory Therapist will have you perform complete pulmonary function testing and review your airway clearance techniques. Once you have completed your diagnostic testing your Registered Dietician will assess your diet and determine the need for dietary changes, enzyme dosing adjustment and supplements. Your Social Worker will help you resolve insurance issues, enroll you for the Florida Medicaid Waiver program and assist with referrals to other specialty practices as needed. Your dedicated CF Pulmonologist is happy to spend as much time as you need to assess and discuss your health status and care plan.

Please tell the CF team and the scheduler if you have the following or have been told you have MRSA or Cepacia.

PATIENT ASSISTANCE PROGRAMS

Cayston Assistance Program
Cayston Patient Authorization Form
Cayston Reimbursement Brochure
Cayston Patient Assistance Program Form
Cayston Specialty Pharmacy List

TOBI Website
TOBI Patient Enrollment Program

Pfizer Patient Assistance Website
Pfizer Assistance Program

Johnson & Johnson Patient Assistance Website
J&J Patient Assistance Application

Pulmozyme Website
Pulmozyme Co Pay Card
Pulmozyme Patient Authorization Form

Zenpep Website
Zenpep Live2Thrive

Creon CF Care Forward Patient Assistance

Click here for Cystic Fibrosis Links
Click here for Cystic Fibrosis Adult Care: Consensus Conference Report

OPPORTUNITIES TO DONATE

Cystic Fibrosis Foundation
Florida Hospital Foundation

RESOURCES

The Salt Room – Salt therapy is the therapeutic use of natural salt in a simulated microclimate where pulverized salt is blown into the room for occupants to passively breathe in.  Many CF patients report decreased congestion and an easier time clearing secretions.
THE EFFECT OF HALOTHERAPY ON PULMONARY FUNCTION, DYSPNEA AND SINUS SYMPTOMS IN PATIENTS WITH CYSTIC FIBROSIS

Lyndsey’s TLC Foundation

The Florida Department of Health
Adult CF Waiver Brochure
Boomer Esiason Transplant Grant

Pharmacies

Orlando CF Pharmacy
National CF Pharmacy

SCHOLARSHIPS

The Cystic Fibrosis Scholarship Foundation
CF CareForward Scholarship
The Elizabeth Nash Foundation Scholarship Program
Boomer Esiason Foundation Scholarships